Wednesday, September 23, 2009

As the mother of this amazing little boy I can't begin to express the joy my heart feels everyday I wake up and see that he continues to thrive and continues to progress. Ahh, it is as if every moment I look into his brown eyes and thank g-d how fortunate we were to have this opportunity to have our son back. One thing is important to note, my son is not the only fortunate soul that had this chance, I can name countless of other children and adults that have been fortunate to have this opportunity of restored health.

Last year was a year of suffering, in the ensuing years I want to pay back the universe for this amazing chance of a lifetime and be able to bring this technology to U.S. I want others to feel this burden of lead lifted off of them and be able to have the same lightness of feelings re: waking up in the morning and being able to see their love on thrive and succeed like their counterparts. All I care about is that my son can learn, laugh, giggle and have the same emotions as his peers. All I care about is that at 5 he feels like his peers and does not have to continue to go to doctors and tell him be brave for the doctor, that is just unfair and not right. I love to wake up to my son's beautiful smile and his amazing laughter, to his little warm body, to his growing interest in life, asking questions about g-d, life, death, his little body, other people's difference and learning that life is just about that learning daily. NO matter what. I love putting my son to sleep and reading to him and listening to him question the book, or watching him listen to music. Everyday, he is singing his little heart out, about everything. Ahh we as a family have truly hit the jackpot, we can be at peace with our son and his growth everything else is just that everything else.